Research

Malignant Hyperthermia North American Registry

Protocol Description

The purpose of this research registry is to collect data about patients who have experienced malignant hyperthermia so that researchers can study a large body of medical records to answer questions about the condition and its treatment and to help identify and recruit patients who may be eligible for future research studies. Malignant hyperthermia is a rare life-threatening biochemical chain reaction triggered in some individuals by exposure to certain drugs used for general anesthesia.

Eligibility Criteria

Patients who have experienced malignant hyperthermia or whose family members have had an episode of malignant hyperthermia are invited to take part in this registry.
Boys: All ages
Girls: All ages

Requirements
With permission, the patient’s physician will provide relevant medical information to be recorded into the registry’s database.
Visits: None
Duration: Not applicable

Status: Open for Enrollment

Source of Support
Malignant Hyperthermia Association of the United States

Additional Resources
Malignant Hyperthermia Association of the United States