Research

RePAIR Study

Recovery from Pediatric Acute Illness Research (RePAIR)

Protocol Description

This study documents the outcomes of children and their families after children receive care in the Pediatric Intensive Care Unit (PICU) and are sent home from the hospital. Through use of questionnaires given during hospitalization and after discharge as well as telephone follow-up, researchers will study the long-term impact of treatment in intensive care. Findings will allow the design of additional studies that may lead to prevention and treatment of adverse effects of critical illness and may ultimately improve the intensive care of children.

Eligibility Criteria

Children of both genders between the ages of 2 and 18 who receive care in the (PICU) will be eligible.
Boys: 2 to 18 years
Girls: 2 to 18 years

Requirements
In addition to collecting medical information relating to the child’s condition, diagnosis, treatment and care, researchers will have families complete questionnaires while in the hospital and after the child is discharged to assess recovery. Up to 7 surveys will be given, with telephone follow-up at 1, 6 and 12 months after discharge and annually thereafter for up to 4 years.
Visits: None beyond hospitalization for the patient’s illness
Duration: Up to 4 years following discharge

Status: Open for Enrollment

Source of Support
National Institutes of Health