Patients and Families

Online Support Programs

Connect with others through chat rooms, mailing lists, bulletin boards, and matching programs

Children’s Disability List of Lists
A current, annotated list of mailing lists for families of children with disabilities and special needs; each list has been validated (by webmaster) for subscription information and family orientation.

Disabilities-R-Us
Internet chat site created by and for people with physical disabilities; features chat room, message board, mailing list and more. Also offers links to a wide variety of other disability-related sites covering topics such as assistive technology, legal information, physical and learning disabilities, travel, publications, etc.

Healthlink USA
Links to web sites which primarily include personal stories, message boards and support for parents / families, with some information about treatment, statistics, and current research.

Mothers United for Moral Support (MUMS)
MUMS is a national Parent-to-Parent organization for parents or care providers of a child with any disability, disorder, chromosomal abnormality or health condition. The organization’s main purpose is to provide support to parents in the form of a networking system that matches them with other parents whose children have the same or similar condition. Through a database of over 16,000 families from 49 countries covering over 2800 disorders, even very rare syndromes or conditions can usually be matched.