Research

Sickle Cell Research Registry

Protocol Description

This registry enables researchers to review and study medical records of a large number of individuals with Sickle Cell Disease (SCD) to answer questions about the disease and its treatment. It also helps identify and recruit patients eligible for future research studies to evaluate drugs and procedures offered for SCD treatment. The registry stores medical record information of patients receiving treatment for SCD in the Division of Pediatric Hematology/Oncology at Children’s Hospital of Pittsburgh of UPMC. Also participating in this Registry are Brookdale University Hospital and Medical Center, Louisiana State University Health Sciences Center and Schneider Children’s Hospital.

Eligibility Criteria

All patients, newborn through 21 years, seeking treatment for SCD at Children’s Hospital of Pittsburgh, are asked to participate in this registry
Boys: Newborn through age 21
Girls: Newborn through age 21

Requirements
With permission, participants’ current and future medical record information is gathered by the medical staff of Children’s Division of Pediatric Hematology/Oncology. Information is entered into a database, stripped of all identifiers and assigned unique code numbers.

Status: Open for Enrollment

Source of Support
Division of Pediatric Hematology/Oncology, Children’s Hospital of Pittsburgh of UPMC

Additional Resources
Sickle Cell Disease