Research

Fragile X Sleep Study

Are Children with Fragile X Losing their Zzzz’s … and Y? A Study of Sleep Patterns of School-age Children with FXS using Actigraphy

Protocol Description

The purpose of this study is to compare sleep patterns of children with Fragile X syndrome (FXS) to their same-age peers. Researchers will explore the degree to which children with FXS have sleeping difficulties, reasons behind sleep problems and the impact on behavior.
Study Level: Feasibility

Eligibility Criteria

Families of boys and girls age 6 to 11 with FXS, either full or partial mutation, are invited to participate, as well as a similar number of typically developing children.
Boys: Ages 6 to 11
Girls: Ages 6 to 11
 
Requirements
Parents/caregivers will be required to complete several questionnaires relating to the child’s sleep habits and behavior. Additionally, parents will be required to complete a daily sleep diary for 10 days, during which the child will also wear an actigraph, a small watch-like device worn on the wrist or ankle that measures movement. All items are mailed to and completed in the home.
Visits/Sessions: 0
Duration: Less than 2 weeks
 
Status: Open for Enrollment
 
Source(s) of Support
Fragile X Center
 

Primary Investigator(s)

Rebecca Kronk, MSN, CRNP, PhD

Contact Information

For information or to enroll, please contact:
Paula Ciliberti
412-692-6538

Last Update
February 6, 2014
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Last Update
February 6, 2014
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