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For further information and resources regarding Fragile X Syndrome, call, write, or visit the following organizations and request a copy of their newsletter or other publications.

Take part in The National Fragile X Survey
The National Fragile X Survey will look at how fragile X affects families. The survey will be the first to gather national data from families that can be used to inform policy and improve practice.

National Fragile X Foundation
P.O. Box 190488-0488
San Francisco, CA 94119-0488
800-688-8765; 510-763-6030
510-763-6223 (fax)
E-mail: natlfx@sprintmail.com
Web: http://www.fragilex.org

The mission of the National Fragile X Foundation is to promote education and research of Fragile X syndrome, and disseminate information and new findings. The Foundation holds a bi-annual conference that is an opportunity to share and exchange the latest information and research for Fragile X Syndrome. Publishes a newsletter, The Foundation Quarterly. Offers a list of print and other media materials.

View Resources from the National Fragile X Foundation
 

FRAXA Research Foundation
45 Pleasant Street
Newburyport, MA 01950
978-462-1866
978-463-9985 (fax)
E-mail: kclapp@fraxa.org
Web: http://www.fraxa.org/
 

A national nonprofit organization that funds research aimed at finding a treatment or cure for Fragile X Syndrome. Publishes a quarterly newsletter, FRAXA Update, as well as other materials. Maintains a Web site and lists about Fragile X; and organizes advocacy and fundraising events around the country.

Conquer Fragile X Foundation
189 Bradley Place, Suite 1
Palm Beach, FL 33480
561-842-9219
877-275-1192 (fax)
E-mail: mail@cfxf.org
Web: http://www.conquerfragilex.org/

Seeks to create strong, dynamic linkages between Fragile X researchers in the U.S. and abroad. Supports Fragile X research projects and encourages creative approaches to strengthen the body of Fragile X research through cooperation and coordination of research efforts.

The National Institute of Child Health and Human Development (NICHD)
P.O. Box 3006
Rockville, MD 20847
1-800-370-2943
301-984-1473 (fax)
E-mail: NICHDInformationResourceCenter@mai.nih.gov
Web: http://www.nichd.nih.gov
 

The NICHD Information Resource Center is a source for NIHD brochures, booklets, and other materials related to the health of children adults, families, and populations.

Dolan Learning Center - Your Genes Your Health
This site is a multi-media guide to genetic disorders.
Web: www.ygyh.org

Need Individual Education Program (IEP) Help? 
Check out information about general education resources, IEP websites, and IEP books/DVDs. Go to The National Fragile X Foundation website.

Additional Resources: 

Order resources from The National Fragile X Foundation

Support groups

Last Update
July 19, 2013
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Last Update
July 19, 2013
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