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The Cystic Fibrosis Foundation (CFF) now publishes national outcome data from cystic fibrosis (CF) centers across the United States.
Below are pulmonary function and nutritional outcomes from Children’s Hospital of Pittsburgh of UPMC. Both outcomes are considered important indicators of the health of CF patients. These two aspects have significant prognostic implications and are strong determinants of longevity (length of life) and quality of life. The Forced Expiratory Volume in 1 second (FEV1, the volume of air a person is able to forcefully blow out in a second) is considered a good indicator of lung function. The Body Mass Index (BMI, a ratio of body weight to stature) is considered a good indicator of nutritional status.
Children’s Hospital's data is shown compared to the average outcomes reported by the CFF for all accredited CF centers in the United States and also against the values reported by those centers regarded as top 10 performers. (2017 data)
Lung Function in Children*
Median FEV1 percent of predicted in children 6 to 17 years of age.
* Adjusted for attained age of patients, gender, pancreatic sufficiency, race/ethnicity, socioeconomic status, and age of diagnosis
The above data is raw data supplied to us by the Cystic Fibrosis Foundation (CFF). There are factors that can influence the data. The CFF has made adjustments in the data (adjusted for attained age of patients, gender, pancreatic sufficiency, race/ethnicity, socioeconomic status, and age of diagnosis) and has publicly reported this on its Web site.
Children's Hospital's main campus is located in the Lawrenceville neighborhood. Our main hospital address is:
UPMC Children’s Hospital of Pittsburgh
One Children’s Hospital Way
4401 Penn Ave.
Pittsburgh, PA 15224
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