Children's Hospital is part of the UPMC family.
The goal of the Cystic Fibrosis Patient Registry is to create a tool to study a broad population of individuals who have cystic fibrosis (CF) to better understand the illness and ultimately improve the care and survival of those with CF. Approximately 22,000 patients who have CF across the U.S. will participate in the patient registry, which is sponsored by the Cystic Fibrosis Foundation. Children’s Hospital of Pittsburgh of UPMC plans to enroll all patients with CF.
All pediatric and adult patients with cystic fibrosis who are being treated at the Antonio J. and Janet Palumbo Center at Children’s Hospital of Pittsburgh of UPMC.
Boys: Newborn to adult
Girls: Newborn to adult
Permission to record information on the participant’s health into the database and completion of an annual questionnaire by participants or parent/guardians.
Cystic Fibrosis Foundation
David M. Orenstein, MD
To get started, please contact either:
Elizabeth Hartigan, MPH, RN, CCRC
Sandy Hurban, RN
Adrienne Horn, RN
Children's Hospital's main campus is located in the Lawrenceville neighborhood. Our main hospital address is:
UPMC Children’s Hospital of Pittsburgh
One Children’s Hospital Way
4401 Penn Ave.
Pittsburgh, PA 15224
In addition to the main hospital, Children's has many convenient locations in other neighborhoods throughout the greater Pittsburgh region.
With myCHP, you can request appointments, review test results, and more.
For questions about a hospital bill call:
To pay your bill online, please visit UPMC's online bill payment system.
Interested in giving to Children's Hospital? Visit Children's Hospital of Pittsburgh Foundation's website to make a donation online.