Support Groups
Below is a list of support programs available to children with sickle cell disease and their families.
Sickle Cell Teen Group
Children’s Sickle Cell Program offers a group meeting at least once a month for youth ages 12 to 21. This group brings together teens living with sickle cell disease to discuss issues surrounding their medical illness. Some of the topics addressed are the transition from pediatric to adult care, self-esteem and pain. For more information, please contact Tia Martin, MSW, at 412-692-6072 or tia.martin@chp.edu.
Sickle Cell Disease Association of America
The Sickle Cell Disease Association of America is a national organization that provides support of all types to patients with sickle cell disease and their families. Visit their Web site at www.sicklecelldisease.org.
Children’s Sickle Cell Foundation
In 2002, a group of energetic parents and family members formed Children’s Sickle Cell Foundation, Inc. The mission of the Foundation is to raise funds and to provide support in many ways to patients and families dealing with sickle cell disease or those detected with sickle cell trait. For more information, contact Andrea M. Williams at awilliams2024@comcast.net or call 412-488-CSCF (2723).
Updated 6/11/07
