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The Tuberous Sclerosis Clinic, part of the Brain Care Institute at UPMC Children’s Hospital of Pittsburgh, meets monthly to care for children and adults with this tuberous sclerosis complex (TSC). It is staffed by trained pediatric and adult neurologists with the support of nurse practitioners with prompt referrals to multiple subspecialists with expertise in this area. The clinic helps diagnose and manage patients with this disease and provide them with ongoing subspecialty care.
Learn more about Child Neurology the Tuberous Sclerosis Alliance of Western Pennsylvania.
The Brain Care Institute’s neurologists are leaders in research. Faculty members of the Division of Child Neurology bring into the Pittsburgh biomedical community more than $1 million in federal corporate and foundation research funding each year.
Research on TSC focuses on early intervention and ways to lessen the impact of developmental delays on day-to-day functioning. Advances in research are resulting in new and improved therapies, with medications such as MTOR inhibitors to alter disease expression in organs. New surgical techniques are being developed to remove lesions and preserve organ function. Improved technology is helping pinpoint the regions of the brain responsible for seizures in certain patients, and is creating new therapies to help control or even stop these seizures.
Read some of the most frequently asked questions regarding Tuberous Sclerosis.
Patients are referred to this clinic for ongoing care by any physician after a suspected diagnosis of tuberous sclerosis on a clinical or genetic basis. Additionally, patients or family members of patients with this diagnosis can self-refer to transfer care at any time.
Children's Hospital's main campus is located in the Lawrenceville neighborhood. Our main hospital address is:
UPMC Children’s Hospital of Pittsburgh
One Children’s Hospital Way
4401 Penn Ave.
Pittsburgh, PA 15224
In addition to the main hospital, Children's has many convenient locations in other neighborhoods throughout the greater Pittsburgh region.
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Interested in giving to Children's Hospital? Visit Children's Hospital of Pittsburgh Foundation's website to make a donation online.