Support Services for Sickle Cell Patients and Caregivers

Below is a list of support services and local resources compiled by Children’s Hospital of Pittsburgh of UPMC’s Sickle Cell Program staff to assist parents who have concerns about housing, utilities or employment. The Sickle Cell Disease Association of America provides additional information about support services for families dealing with sickle cell disease.

Housing

Children’s sickle cell social worker will assist families of children with sickle cell disease find adequate housing through agencies such as the office of Housing and Urban Development. Verification of medical diagnosis may be needed. For more information, contact Tia Martin, MSW, at 412-692-6072 or tia.martin@chp.edu.

Utilities

If meeting your utilities bill is a concern, first talk directly to your utility carrier. Next, the public utility commission may offer additional options at www.puc.state.pa.us/

Remember: think ahead. Call before your service is terminated. Options are limited once service is turned off. Contact Tia Martin, MSW, at 412-692-6072 or tia.martin@chp.edu if you require further assistance or proof of medical diagnosis.

Employment

Employment issues may cause extra stress for patients and families dealing with sickle cell disease. Be proactive. For the best outcome, discuss your situation in advance with your employer. Children’s Sickle Cell Program staff can assist you with employment concerns, such as applying for Family or Medical Leave (FMLA). For more information, contact Tia Martin, MSW, at 412-692-6072 or tia.martin@chp.edu.

Health Insurance/SSI: Disability

No child should be without health insurance. In the state of Pennsylvania, options include Children’s Health Insurance Program (CHIP) as well as social security/disability benefits. For more information about the option that best suits your needs, contact Tia Martin, MSW, at 412-692-6072 or tia.martin@chp.edu.

Lodging

During times your child may be hospitalized, please view our list of overnight accommodations for parents and siblings.

Other Local Resources