Grace Colbert – Steroid Resistant Nephrotic Syndrome

Learn more about Grace's experience with Nephrotic Syndrome at Children's Hospital.

At 9 years old, Grace Colbert was struggling to put on her dance leotard when her mother noticed that her young daughter was extremely swollen. That episode resulted in a diagnosis of a rare condition called steroid resistant nephrotic syndrome.

See more patient stories from the Center for Rare Disease Therapy.

Contact Us

At the Center for Rare Disease Therapy, every child diagnosed with a rare disease receives an individualized treatment plan and family-centered care.

For an appointment, consultation, or patient referral with an expert at Children’s Hospital of Pittsburgh of UPMC for a child diagnosed with a rare disease, please contact:

Jodie Vento, MGC, LCGC
Phone: +1-412-692-RARE or 412-692-7273
Email: RareCare@chp.edu


Contact Us

At the Center for Rare Disease Therapy, every child diagnosed with a rare disease receives an individualized treatment plan and family-centered care.

For an appointment, consultation, or patient referral with an expert at Children’s Hospital of Pittsburgh of UPMC for a child diagnosed with a rare disease, please contact:

Jodie Vento, MGC, LCGC
Phone: +1-412-692-RARE or 412-692-7273
Email: RareCare@chp.edu