For Parents
Children’s
Disability
List of Lists
A current,
annotated
list of mailing
lists for
families of
children with
disabilities
and special
needs; each
list has been
validated
(by webmaster)
for subscription
information
and family
orientation.
Disabilities-R-Us
Internet chat
site created
by and for
people with
physical disabilities;
features chat
room, message
board, mailing
list and more.
Also offers
links to a
wide variety
of other disability-related
sites covering
topics such
as assistive
technology,
legal information,
physical and
learning disabilities,
travel, publications,
etc.
General
Disability
Online Discussion
Groups
Information
(also from
FamilyVillage)
on General
Disability
or Health-Related
Chat Rooms,
Mailing Lists,
Newsgroups,
and Web Boards.
Health
and Disability-Related
Mailing Lists
A large list
of mailing
lists which
are disability
and/or health
related, from
FamilyVillage.
Includes specific
topics such
as Developmental
Disabilities,
Spina Bifida
and Cerebral
Palsy.
Healthlink
USA
Links to web
sites which
primarily
include personal
stories, message
boards and
support for
parents /
families,
with some
information
about treatment,
statistics,
and current
research.
Mothers
United for
Moral Support
(MUMS)
MUMS is a
national Parent-to-Parent
organization
for parents
or care providers
of a child
with any disability,
disorder,
chromosomal
abnormality
or health
condition.
The organization’s
main purpose
is to provide
support to
parents in
the form of
a networking
system that
matches them
with other
parents whose
children have
the same or
similar condition.
Through a
database of
over 16,000
families from
49 countries
covering over
2800 disorders,
even very
rare syndromes
or conditions
can usually
be matched.
Parent
to Parent
of Pennsylvania
(P2P)
Network created
by and for
families of
children and
adults with
special needs;
connects families
in similar
situations
with one another
so they can
share experiences,
offer practical
information
and/or support.
P2P also provides
assistance
in establishing
local support
groups, grant
writing and
fundraising.
Parent
to Parent
Internet of
Pennsylvania
E-mail support
group for
parents of
children with
special needs
which allows
parents to
give and receive
support, advice,
information,
resources,
and share
some of the
challenges
and successes
of parenting
children with
disabilities.
For Kids
and Teens
Sibling
Support Project
National program
dedicated
to the interests
of brothers
and sisters
of people
with special
health and
developmental
needs; based
at Children’s
Hospital and
Regional Medical
Center in
Seattle, WA.
Top
Updated 7/26/07