Medical References
Information About Specific Diseases, Conditions & Syndromes
The
Arc
National organization
of and for
people with
mental retardation
and related
developmental
disabilities,
and their
families.
Web site offers
extensive
information
about mental
retardation
and available
services plus
links to related
resources.
Cerebral
Palsy: A Multimedia
Tutorial for
Children and
Parents
Basic level
information
about CP presented
through photos
and other
media.
Cerebral
Palsy Information
Central
Information
for individuals
with CP and
their families.
Cerebral
Palsy Network
Wide range
of links and
information
resources
for individuals
and families
affected by
cerebral palsy,
or those interested
in learning
more about
this condition.
CHADD
(Children
and Adults
with Attention-Deficit/Hyperactivity
Disorder)
Features medical
information,
updates on
current research,
fact sheets,
chat room
and links
to related
sources.
Children
with Spina
Bifida: A
Resource Page
for Parents
Useful, well-maintained
site provides
broad range
of information
and resources
to parents
of children
with spina
bifida. Part
of the Discovering
Spina Bifida
web ring.
Children’s
Craniofacial
Association
Information
and services
for children
with facial
difference/disfigurement
and their
families.
Children
with Spina
Bifida Hotlines
Addresses
and toll-free
phone numbers
for a wide
range of groups
and agencies
offering information
and services
to families
affected by
spina bifida.
CP
Resource Center
Well-organized,
readable resource
linking families
to information
about all
aspects of
cerebral palsy;
includes a
comprehensive
FAQ, dictionary,
links, and
much more.
Features overview
of material
presented
in Cerebral
Palsy: A Guide
for Care by
Miller, Bachrach,
et al, published
by Hopkins
Press.
Top
How
Can I Help?
Information
for friends
and relatives
of children
with cerebral
palsy from
the Cerebral
Palsy Association
of Western
Australia
Ltd.
Hydrocephalus
Association
Organization
offers one-to-one
telephone
support plus
a broad range
of educational
materials
for families
and individuals
affected by
hydrocephalus.
Insights
into Spina
Bifida (Newsletter
of the Spina
Bifida Association
of America)
Articles available
online (with
Acrobat Reader)
include coverage
of topics
such as: enhancing
social skills
development;
latex allergy
and latex
safety at
school; academic
success; technology;
obesity; searching
for fun and
games.
Kid
Power
Support and
information
for families
living with
Cerebral Palsy
and other
disabilities.
Features a
Disability
Lending Library
which can
be used to
borrow selected
books for
one month;
cost is return
postage only.
Klippel-Feil
Connection
Online
Information
about this
condition
which involves
congenital
fusion of
at least two
of the seven
vertebrae
in the cervical-spine.
Latex
Allergy Links
A comprehensive
and up-to-date
listing of
latex allergy-related
web sites
plus references
to relevant
books and
articles.
LD
Online
Site is an
interactive
guide to learning
disabilities
and attention
deficit disorders
for parents,
teachers and
children.
Features news,
newsletter,
“Kid
Zone,”
checklists,
articles,
discussion
areas and
more.
Top
Learning
Disabilities
Association
of America
Pittsburgh-based,
nation's
largest non-profit
volunteer
organization
advocating
for individuals
with learning
disabilities.
Web site offers
up-to-date
calendar of
events, links,
news bulletin
and fact sheets,
plus a comprehensive
array of books,
videos and
other resources
for purchase.
Lipomyelomeningocele
Family Support
Network
Information
and support
for families
and individuals
affected by
Occult Spinal
Dysraphisms
(i.e., Tethered
Cord, Lipomyelomeningocele,
Fatty Filume
Terminal,
Diastematymelia,
and others)
National
Association
for Parents
of the Visually
Impaired
Support and
information
for parents
of children
with visual
impairments.
National
Center for
Learning Disabilities
News, fact
sheets, research
reports, screening
tools and
other information
about learning
disabilities.
Parents
of Premature
Babies
Information
and access
to support
for families
with children
born six weeks
or more before
due date;
features direct
link to “Preemie-L”
mailing list.
Spina
Bifida Association
of America
Families of
children with
spina bifida
can find medical
information,
research and
educational
updates, plus
access to
local support
groups.
United
Ostomy Association,
Inc.
Volunteer-based
health organization
providing
education,
information,
support and
advocacy for
individuals
(and their
families)
who have had
or will have
intestinal
or urinary
diversions.
Links to suppliers,
online magazine,
support groups
and more.
Urinary
Incontinence
in Children
Information
about incontinence
and other
bladder disturbances
from the National
Kidney and
Urologic Diseases
Information
Clearinghouse.
