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A research component of the ImproveCareNow (ICN) collaborative network, the ICN research registry is a secure database of information about children, adolescents, and young adults with Crohn’s disease and ulcerative colitis, also called inflammatory bowel disease (IBD). ICN is a community of providers, patients, and parents working together to find new and better ways to treat and deal with Crohn’s disease and ulcerative colitis. The registry enables researchers to utilize de-identified data to better compare outcomes for provider institutions and to accelerate leading-edge research about these conditions.
This study is accepting patients of both genders and all ages who have Crohn’s disease or ulcerative colitis.
Males and Females: All ages
Research participants will allow their healthcare providers to submit information about their health and medical status, tests, treatments, and treatment response, as well as information about daily experience with IBD and overall well being. Beyond gender, age and zip code, the patient information will be non-identifiable.
Visits: None beyond normal clinical care visits
Duration: Not applicable
Inflammatory Bowel Disease
Sapana Shah, MD
For more information about the study or enrollment, please contact:
Roger Odom, MSIT, MBA
Children's Hospital's main campus is located in the Lawrenceville neighborhood. Our main hospital address is:
UPMC Children’s Hospital of Pittsburgh
One Children’s Hospital Way
4401 Penn Ave.
Pittsburgh, PA 15224
In addition to the main hospital, Children's has many convenient locations in other neighborhoods throughout the greater Pittsburgh region.
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Interested in giving to Children's Hospital? Visit Children's Hospital of Pittsburgh Foundation's website to make a donation online.