Syringomyelia Database

The Park-Reeves Syringomyelia Research Consortium Database

Protocol Description

The purpose of this program is to help further the medical community’s understanding of syringomyelia and Chiari malformation. Through the collection of data on 1,000 individuals by 25 medical centers in the United States, this study examines the underlying causes, natural history and optimal treatment of syringomyelia and Chiari malformations.

Eligibility Criteria

This study is open to individuals of both genders, up to age 21, who have been diagnosed with Syringomyelia and Chiari type I malformation.
Males: Up to age 21
Females: Up to age 21

Requirements

Participation in the study will not change any clinical, surgical or imaging routines required for the child’s treatment. With permission, participants’ past, current and future medical record information will be placed into the study database, along with data collected for demographic information, and information related to the diagnosis and treatment of syringomyelia and Chiari type I malformation.
Visits: None
Duration: Not applicable

Status: Open for Enrollment

Source(s) of Support

Washington University, St. Louis

Primary Investigator

Mandeep Tamber, MD, PhD

Contact Information

For information, please contact:
Arlene M. Luther, BS, RN
412-692-9965