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The purpose of this program is to help further the medical community’s understanding of syringomyelia and Chiari malformation. Through the collection of data on 1,000 individuals by 25 medical centers in the United States, this study examines the underlying causes, natural history and optimal treatment of syringomyelia and Chiari malformations.
This study is open to individuals of both genders, up to age 21, who have been diagnosed with Syringomyelia and Chiari type I malformation.
Males: Up to age 21
Females: Up to age 21
Participation in the study will not change any clinical, surgical or imaging routines required for the child’s treatment. With permission, participants’ past, current and future medical record information will be placed into the study database, along with data collected for demographic information, and information related to the diagnosis and treatment of syringomyelia and Chiari type I malformation.
Duration: Not applicable
Washington University, St. Louis
Stephanie Greene, MD
For information, please contact:
Kimberly Diamond, BS, BA
Children's Hospital's main campus is located in the Lawrenceville neighborhood. Our main hospital address is:
UPMC Children’s Hospital of Pittsburgh
One Children’s Hospital Way
4401 Penn Ave.
Pittsburgh, PA 15224
In addition to the main hospital, Children's has many convenient locations in other neighborhoods throughout the greater Pittsburgh region.
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Interested in giving to Children's Hospital? Visit Children's Hospital of Pittsburgh Foundation's website to make a donation online.