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Through this program, researchers will use input from people with cleft lip and/or cleft palate to develop a patient-reported outcome tool – a questionnaire that will help clinicians measure and understand what young patients with these conditions think and feel about their appearance before and after surgical treatment for their condition.
Children and young adults of both genders, ages 6 to 29 years, who are being surgically treated for their cleft lip or cleft palate, are eligible to participate.
Males and Females: Ages 6 to 29
Participants will be asked a series of questions before and after surgery related to their feelings about how they look and feel about their facial features, speech, breathing, and other facets of their appearance. The questionnaire may be administered multiple times over the course of patients’ treatment for their conditions. Additionally, researchers will collect medical history information about participants.
Visits: None beyond normal clinical care for the patient’s condition
Duration: Not applicable
Canadian Institutes of Health Research
Jesse Goldstein, MD
For more information about the study or enrollment, please contact:
Research Specialist Jennifer Fantuzzo, BS
Children's Hospital's main campus is located in the Lawrenceville neighborhood. Our main hospital address is:
UPMC Children’s Hospital of Pittsburgh
One Children’s Hospital Way
4401 Penn Ave.
Pittsburgh, PA 15224
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