Jaxson – Complex Care Center Patient Story


Jaxson was born at 35 weeks, and it didn’t take long for his mom, Kaylee, to realize something was amiss. He weighed 3 pounds and struggled to eat anything by mouth.

After spending time in the NICU in Erie, doctors transferred him to UPMC Children’s Hospital of Pittsburgh.

The care team at Children's took Jaxson to the NICU once again and placed a feeding tube in his belly.

During his stay, many doctors and specialists — including geneticists and neurologists — came to see him. They confirmed he had a genetic disorder and a seizure disorder.

After healing from his treatment and gaining some much-needed weight, Kaylee thought her son was on the road to a speedy recovery.

“Little did we know that this was just the beginning of the daily struggles for Jaxson,” Kaylee said. “He has endured many things from feeding intolerance to severe hypoglycemic episodes and multiple illnesses.”

Complex Care Center Support for Jaxson and His Family

Throughout the ups and downs, Jaxson and his family have received support from the Complex Care Center.

“Without the help from the wonderful Complex Care Center and specialists at UPMC Children’s Hospital, I don’t know where we’d be today!” Kaylee said. “Everyone has gone above and beyond to keep Jaxson healthy. And they've guided us in the care of a child who needs just a little extra help in life. We are so thankful.”

For a consult, contact the Complex Care Center.

Niko suffered from Osteogenesis Imperfecta. Read more about his experience and success of his procedure at UPMC Children's Hospital of Pittsburgh.
Read Niko's Story >>
Elizabeth suffered from several genetic disorders. Read more about her experience at UPMC Children's Hospital of Pittsburgh.
Read Elizabeth's Story >>