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Improved transplant survival rates have focused more attention on finding ways to make recovery less difficult and give children a quality of life vastly better than what patients could expect a decade earlier.
The most difficult period of recovery for child and family is typically the first year after transplantation. As the child’s condition improves, improvement in the child’s quality of life typically follows.
Studies of pediatric intestinal transplant patients at Children’s Hospital of Pittsburgh of UPMC suggest that the quality of life for most patients markedly improves within three years after transplantation.
“They have a lot of catching up to do at first,” says Beverly Park, MSN, CRNP, clinical nurse specialist at Children’s Hospital. “Most of these children have spent the majority of their young lives in the hospital rather than the home environment. They have had to endure many invasive procedures and operations and also have IV catheters, drainage tubes or ostomies. They have not had the opportunity to play, interact with family and experience childhood in the same way that other children experience in the home. After they are discharged from the hospital and return home, they steadily improve both physically and mentally.”
*Total parenteral nutrition, or TPN, is a means of providing protein, fats, carbohydrates, fluid and vitamins to the body through a special solution given through a vein into the bloodstream.
Kosmach-Park, B., Iurlano, K., Baird, C., Mazariegos, G., Sindhi, R., Abu-Elmagd, K., Reyes, J. Current status of pediatric intestine transplant recipients: care requirements and patient outcomes. Children’s Hospital of Pittsburgh, Starzl Transplantation Institute. VII International Small Bowel Transplant Symposium, Sept 12 - 15, 2001; Stockholm. Abstract #03.
Learn more about Improving Life After Intestinal Transplantation.
Children's Hospital's main campus is located in the Lawrenceville neighborhood. Our main hospital address is:
UPMC Children’s Hospital of Pittsburgh
One Children’s Hospital Way
4401 Penn Ave.
Pittsburgh, PA 15224
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