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- New Center Offers Hope to Kids From Around the World With Rare Diseases
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American Academy of Pediatrics
The American Academy of Pediatrics is an organization of 60,000 pediatricians committed to the attainment of optimal physical, mental and social health and well-being for all infants, children, adolescents and young adults.
American College of Rheumatology
The American College of Rheumatology is an organization of and for physicians, health professionals and scientists that advances rheumatology through programs of education, research, advocacy and practice support that foster excellence in the care of people with arthritis and rheumatic and musculoskeletal diseases.
Arthritis Foundation efforts center on research, prevention and quality of life. The organization provides nearly $20 million in grants to nearly 300 researchers to help find a cure, prevention or better treatment for arthritis. Its sponsorship of research for more than 50 years has resulted in major treatment advances for most arthritis diseases. The Foundation also provides community-based services nationwide to make life with arthritis easier.
Arthritis Foundation (Great Lakes Region)
The Childhood Arthritis & Rheumatology Research Alliance (CARRA) strives to prevent, treat and cure rheumatic diseases in children and adolescents through fostering, facilitating and conducting high quality research.
Childhood RND Educational Foundation
The Childhood RND Educational Foundation was formed to educate health professionals and families about the characteristics and treatment of reflex neurovascular dystrophy (RND) and other amplified musculoskeletal pain syndromes in children.
Cure Juvenile Myositis (JM) Foundation
The Cure JM Foundation serves patients and families battling juvenile dermatomyositis, polymyositis and amyopathic dermatomyositis.
The JA Alliance is a virtual community connected through the Arthritis Foundation website. Members include parents, volunteers, health professionals and anyone who is affected by juvenile arthritis. We’re here to provide the resources and opportunities for you to learn, connect and share with others.
Juvenile Scleroderma Network, Inc. (JSDN)
The Juvenile Scleroderma Network Inc. is a support network helping children and their families with juvenile scleroderma.
Kids Get Arthritis Too
The "Kids Get Arthritis Too" newsletter features the latest information on treatments, research, coping, parenting strategies and profiles of kids with arthritis.
National Institute of Arthritis and Musculoskeletal and Skin Diseases
The National Institute of Arthritis and Musculoskeletal and Skin Diseases is to support research into the causes, treatment, and prevention of arthritis and musculoskeletal and skin diseases, the training of basic and clinical scientists to carry out this research, and the dissemination of information on research progress in these diseases.
Reflex Sympathetic Dystrophy Syndrome Association (RSDSA)
The Reflex Sympathetic Dystrophy Syndrome Association (RSDSA) promotes public and professional awareness of Reflex Sympathetic Dystrophy Syndrome (RSD)/ Complex Regional Pain Syndrome (CRPS) and to educate those afflicted with the syndrome, their families, friends, insurance and healthcare providers on the disabling pain it causes.
Scleroderma Foundation, Western Pennsylvania Chapter
The Scleroderma Foundation supports patients and their families coping with scleroderma through mutual support programs, peer counseling, physician referrals and educational information; educates to promote public awareness and education through patient and health professional seminars, literature and publicity campaigns; and researches to stimulate and support research to improve treatment and ultimately find the cause of and cure for scleroderma and related diseases.
Serving Arthritis Kids (SAK) Backpack Program
Serving Arthritis Kids (SAK) Backpack Program has been developed by the Arthritis Foundation, Great Lakes Region to provide newly diagnosed children and their parents with education, resources and support for managing juvenile arthritis. You can sign up to receive the age appropriate backpack and parents’ tote bag in the Pediatric Rheumatology Clinic at Children’s Hospital of Pittsburgh of UPMC.
Spondylitis Association of America
The Spondylitis Association of America strives to be a leader in the quest to cure ankylosing spondylitis and related diseases, and to empower those affected to live life to the fullest.
The Children’s Institute
The Children’s Institute is dedicated to promoting the well-being of children, young people and their families and to providing services that meet their special needs.
The Lupus Foundation of America, Inc.
The Lupus Foundation of America (LFA) is the nation's leading non-profit voluntary health organization dedicated to finding the causes and cure for lupus. The foundation works to improve the diagnosis and treatment of lupus, support individuals and families affected by the disease, increase awareness of lupus among health professionals and the public and find the causes and cure.
The Lupus Foundation of Pennsylvania
The Lupus Foundation of Pennsylvania promotes awareness, education, service and research for those affected by lupus.
The Myositis Association
The Myositis Association is a 501(c)3 non-profit organization whose mission is to find a cure for inflammatory and other related myopathies, while serving those affected by these diseases. TMA's programs and services provide information, support, and advocacy for myositis patients. The Myositis Association's research program awards grants and fellowships to research the causes, treatments and eventually find a cure for all forms of myositis.
The Vasculitis Foundation advocates for early diagnosis, leading edge treatment and ultimately a cure for all types of vasculitis.
October 28, 2014
October 28, 2014