Fragile X Sleep Study

Are Children with Fragile X Losing their Zzzz’s … and Y? A Study of Sleep Patterns of School-age Children with FXS using Actigraphy

Protocol Description

The purpose of this study is to compare sleep patterns of children with Fragile X syndrome (FXS) to their same-age peers. Researchers will explore the degree to which children with FXS have sleeping difficulties, reasons behind sleep problems and the impact on behavior.

Study Level: Feasibility

Eligibility Criteria

Families of boys and girls age 6 to 11 with FXS, either full or partial mutation, are invited to participate, as well as a similar number of typically developing children.
Boys: Ages 6 to 11
Girls: Ages 6 to 11

Requirements

Parents/caregivers will be required to complete several questionnaires relating to the child’s sleep habits and behavior. Additionally, parents will be required to complete a daily sleep diary for 10 days, during which the child will also wear an actigraph, a small watch-like device worn on the wrist or ankle that measures movement. All items are mailed to and completed in the home.
Visits/Sessions: 0
Duration: Less than 2 weeks

Status: Open for Enrollment

Source(s) of Support

Fragile X Center

Primary Investigator

Rebecca Kronk, MSN, CRNP, PhD

Contact Information

For information or to enroll, please contact:
Paula Ciliberti
412-692-6538