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The purpose of this study is to compare sleep patterns of children with Fragile X syndrome (FXS) to their same-age peers. Researchers will explore the degree to which children with FXS have sleeping difficulties, reasons behind sleep problems and the impact on behavior.
Families of boys and girls age 6 to 11 with FXS, either full or partial mutation, are invited to participate, as well as a similar number of typically developing children.
Boys: Ages 6 to 11
Girls: Ages 6 to 11
Parents/caregivers will be required to complete several questionnaires relating to the child’s sleep habits and behavior. Additionally, parents will be required to complete a daily sleep diary for 10 days, during which the child will also wear an actigraph, a small watch-like device worn on the wrist or ankle that measures movement. All items are mailed to and completed in the home.
Duration: Less than 2 weeks
Fragile X Center
Rebecca Kronk, MSN, CRNP, PhD
For information or to enroll, please contact:
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Children’s Hospital of Pittsburgh of UPMC
One Children’s Hospital Way
4401 Penn Ave.
Pittsburgh, PA 15224
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