Research

Hydrocephalus Research Registry

Characterizing Patient Populations in the Hydrocephalus Clinical Research Network

Protocol Description

The Hydrocephalus Clinical Research Network (HCRN) Registry is a large, ongoing multi-center study about patients with hydrocephalus to review patient conditions and treatment outcomes and learn more about the disease. The registry is being compiled as part of the HCRN, a collaboration of pediatric neurosurgery centers in North America. This registry will help researchers to quickly test hypotheses to help generate future studies for improving the care for hydrocephalus patients.

Eligibility Criteria

Pediatric patients with hydrocephalus under the care of physicians at Children’s Hospital of Pittsburgh of UPMC will be eligible for inclusion in this registry.
Boys: All ages
Girls: All ages

Requirements
Parents will be asked for permission to allow the placement of their child’s past, current and future medical record information into the registry.
Visits: None
Duration: Not applicable

Status: Open for Enrollment

Source(s) of Support
Children's Hospital of Pittsburgh of UPMC, Division of Pediatric Neurosurgery