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After accepting the Fragile X diagnosis, parents move on to face their next challenge — determining how to enhance their child’s functioning. The mission becomes one of deciding how they can best facilitate successful intervention, and in doing so, extend their child’s best possible opportunity to learn.
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When meeting with school personnel, parents should present the information they feel is most important for the staff to know about their child. Bring the child or pictures of him or her to the meeting. Let the staff see that Fragile X Syndrome is more than a list of characteristics, some of which are not seen very positively.
This article provides an outline that parents can follow when meeting with their child’s school faculty.
This article outlines tips parents can use to ensure their children’s school program is appropriate for their needs.
The needs of school-aged children with Fragile X Syndrome include academic, behavioral, social/adaptive, pre-vocational/vocational and physical.
This article discusses ways parents can help children with Fragile X adapt, learn and develop in all areas of their life.
The passage of the Education for All Handicapped Children Act of 1975 was the most significant legislation enacted to meet the needs of special needs children. In 1986, it was expanded to include requirements to children ages 3 to 5 years. In 1990, the act was changed to the Education of Individuals with Disabilities Act (IDEA), which included several changes related to inclusion, placing more emphasis on including the person with a disability in mainstream society, including preschool, public school evaluations and community placements.
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Children's Hospital's main campus is located in the Lawrenceville neighborhood. Our main hospital address is:
UPMC Children’s Hospital of Pittsburgh
One Children’s Hospital Way
4401 Penn Ave.
Pittsburgh, PA 15224
In addition to the main hospital, Children's has many convenient locations in other neighborhoods throughout the greater Pittsburgh region.
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Interested in giving to Children's Hospital? Visit Children's Hospital of Pittsburgh Foundation's website to make a donation online.