Fragile X Clinical & Research Consortium (FXCRC)

In 2006, the National Fragile X Foundation organized the majority of the U.S. medical institutions and clinicians that had an emphasis on Fragile X treatment into a “Fragile X Clinical & Research Consortium (FXCRC)”. The National Fragile X Foundation provides its administrative structure, such as meeting planning, material development, publicity and internal communication. Drs. Robyn Filipink and Rebecca Kronk have been active participants in the Consortium since its inception. The consortium members have worked on informative documents arriving at consensus for these documents.

You can review these documents by clicking on the link provided for each topic.

• Assessment of Fragile X Syndrome (PDF)
• Behavior Problems in Fragile X Syndrome (PDF)
• Educational Guidelines for Fragile X Syndrome: General (PDF)
• Educational Guidelines for Fragile X Syndrome: Preschool through Elementary Students (PDF)
• Educational Guidelines for Fragile X Syndrome: Middle and High School Students (PDF)
• Financial Resources for Individuals with Fragile X Syndrome (PDF)
• Fragile X-associated Primary Ovarian Insufficiency (FXPOI) (PDF)
• Fragile X-associated Tremor/Ataxia Syndrome (FXTAS) (PDF)
• Hyperarousal in Fragile X Syndrome (PDF)
• Medications for Individuals with Fragile X Syndrome (PDF)
• Physical Problems in Fragile X Syndrome (PDF)
• Seizures in Fragile X Syndrome (PDF)
• Sleep in Children with Fragile X Syndrome (PDF)
• Toileting Issues in Fragile X Syndrome (PDF)
• The Use of Complementary and Alternative Therapies in the Treatment of Fragile X Syndrome (PDF)