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This interview was conducted with a 10-year-old boy who received a small bowel transplant after suffering from a spontaneous volvulus of the small bowel.
I didn't do any research, she did. [Points to mom]
Mom: I did a lot of research, mostly Internet searches. [I found that] MedScape was helpful. [Another good website] is Gifts from Heaven. They pass along information and support to families [of kids who need transplants].
Dad: She's a nurse, and she asked her supervisor at work for more information.
Mom: We also bought some books, and got some from the library. But those books dealt mostly with transplants in general; we found the Internet was more helpful for getting specific information about intestinal transplantation.
I first came in 2001. I had lots of tests, so it wasn't too good of an experience. Blood tests, liver biopsy, lower and upper GIs . . .
I was expecting lots of pills. I was afraid of rejection, and lots of pain.
I was on the waiting list for one and a half years.
Mom: I was at work, and [my husband] called to tell me. I said, "No way." In all that time, we'd gotten used to calls. One time, we actually got on a plane [to come to the hospital and receive the transplant], but the donor family backed out. There are false alarms, so we learned not to get our hopes up.
July 9th, 2002.
I have a little more energy, but it's only been a month. I'm getting there. I'd say actually getting the transplant, and realizing that I got it.
Be brave; you'll get through it. And beware of the multi-vitamin; it tastes nasty!
Children's Hospital's main campus is located in the Lawrenceville neighborhood. Our main hospital address is:
UPMC Children’s Hospital of Pittsburgh
One Children’s Hospital Way
4401 Penn Ave.
Pittsburgh, PA 15224
In addition to the main hospital, Children's has many convenient locations in other neighborhoods throughout the greater Pittsburgh region.
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Interested in giving to Children's Hospital? Visit Children's Hospital of Pittsburgh Foundation's website to make a donation online.