For Clinical Researchers

Doctor with mom and girlBuilding a community of research-engaged participants and their families can lead to increased research participation, improved knowledge and more ready adoption of research-based practices. It can further enhance participant trust in research and scientific behavior.

This is true for all investigators, whether conducting research within one’s own clinical setting or partnering with other clinical providers.

Engaging Families and Children

Investigators must be actively involved with participants, their parents, and caregivers throughout all aspects of the research process: recruitment, consent, participation and sharing research results.

Personal interaction and immediate availability are key to assure that families fully understand the research project to address caregivers’ worries about their child’s health and safety, to promote adherence, and to identify and address large and small concerns.

Alejandro Hoberman, MD, and Kumaravel Rajakumar, MD, discuss the importance of active engagement with families throughout the research process. Video with Transcript.


Considerations for success at various stages in the research process: