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Craniosynostosis is a rare and serious condition, seen in about one or two children per 2,000 births. A child is either born with the condition or develops it in their first few months.
Babies' skulls are not fully formed at birth. Instead, pieces of the skull are linked by soft areas called sutures. As a child grows, the sutures allow space for the brain and skull to grow; bones eventually grow where the sutures were. In babies with craniosynostosis, the pieces of the skull that should be separated by sutures have already fused, which means that their brain and skull don't have enough room to grow.
Children can have the condition by itself, called non-syndromic, or isolated, craniosynostosis, or they can have it along with other health issues, or syndromes — this is called syndromic craniosynostosis and is much rarer. The syndromes most commonly associated with craniosynostosis include:
Meet our team at UPMC Children's Hospital of Pittsburgh's Cleft-Craniofacial Center and learn about our treatment options, or contact UPMC Children's Hospital of Pittsburgh at 412-692-5325.
Children's Hospital's main campus is located in the Lawrenceville neighborhood. Our main hospital address is:
UPMC Children’s Hospital of Pittsburgh
One Children’s Hospital Way
4401 Penn Ave.
Pittsburgh, PA 15224
In addition to the main hospital, Children's has many convenient locations in other neighborhoods throughout the greater Pittsburgh region.
With myCHP, you can request appointments, review test results, and more.
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Interested in giving to Children's Hospital? Support the hospital by making a donation online, joining our Heroes in Healing monthly donor program, or visiting our site to learn about the other ways you can give back.