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For more information about research, please call our main office at 412-692-6438.
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At 9 years old, Grace Colbert was struggling to put on her dance leotard when her mother noticed that her young daughter was extremely swollen. That episode resulted in a diagnosis of a rare condition called steroid resistant nephrotic syndrome.
See more patient stories from the Center for Rare Disease Therapy.
At the Center for Rare Disease Therapy, every child diagnosed with a rare disease receives an individualized treatment plan and family-centered care.
For an appointment, consultation, or patient referral with an expert at UPMC Children's Hospital of Pittsburgh for a child diagnosed with a rare disease, please contact:
Jodie Vento, MGC, LCGC Phone: +1-412-692-RARE or 412-692-7273 Email: RareCare@chp.edu
Children's Hospital's main campus is located in the Lawrenceville neighborhood. Our main hospital address is:
UPMC Children’s Hospital of Pittsburgh One Children’s Hospital Way 4401 Penn Ave. Pittsburgh, PA 15224
In addition to the main hospital, Children's has many convenient locations in other neighborhoods throughout the greater Pittsburgh region.
With myCHP, you can request appointments, review test results, and more.
For questions about a hospital bill call:
To pay your bill online, please visit UPMC's online bill payment system.
Interested in giving to Children's Hospital? Support the hospital by making a donation online, joining our Heroes in Healing monthly donor program, or visiting our site to learn about the other ways you can give back.