Pancreatitis INSPPIRE Registry

A Study of Acute Recurrent and Chronic Pancreatitis in Children by the International Study Group of Pediatric Pancreatitis In Search of a Cure (INSPPIRE)

Protocol Description

The multi-center INSPPIRE patient registry builds a database of information from children with pancreatitis to help researchers determine the prevalence of this condition, understand the causes and progression of the disease, and review laboratory and imaging findings as well as responses to any treatments given. By gathering information from children with pancreatitis, researchers hope to better understand the disease process and, in turn, develop better tests and treatments. INSPPIRE is a group of 21 pediatric gastroenterology centers in the United States, Canada, Israel, and Australia.

Eligibility Criteria

Patients of both genders through age 18, who have been diagnosed with acute recurrent pancreatitis or chronic pancreatitis, are eligible for inclusion.
Boys: Through age 18
Girls: Through age 18


At enrollment, a pediatric pancreatitis baseline patient questionnaire will be completed, and a blood sample from the participant and saliva sample from a family member will be taken. Participants will be seen by a member of the research team every 3 months for 2 years, and a questionnaire will be completed at the 1-year follow-up visit.
Visits: 9
Duration: 2 years

Status: Open for Enrollment

Source(s) of Support

National Institutes of Health

Contact Information

For more information about the registry, please contact:
Kathleen Calabro RN, BSN