Sickle Cell Research Registry

Protocol Description

The purpose of this research registry is to collect information about patients with sickle cell disease and their treatments. The registry will allow researchers to review and study medical information about many individuals with sickle cell disease, which may help them to answer questions about the disease, its treatment, and best ways to optimize the delivery of care. It will also help researchers identify and recruit patients who are eligible for participation in future studies directed at evaluating the safety and effectiveness of drugs, devices, or procedures.

Eligibility Criteria

This study is enrolling participants of both genders, who are older than a month of age and who are being treated in the Sickle Cell Program of Children’s Hospital of Pittsburgh of UPMC.
Males and Females: Ages 1 month and older

Requirements

With permission, participants’ past, current, and future medical record information will be placed into the research registry. Participants who opt to join the Children’s Sickle Cell Foundation may also be asked to complete surveys in the future related to sickle cell disease.
Visits: Not applicable
Duration: Participants may be enrolled for life

Status: Enrollment Open

Additional Information

Hematology/Oncology Research

Primary Investigator

Cheryl A. Hillery, MD

Contact Information

For more information about the study or enrollment, please contact:
Angela Martino, BSN, RN
412-692-6467