Support Programs Online

Local/Western Pennsylvania Resources: Developmental Disabilities

accessAbilities, Inc. 
2904 Seminary Drive, Greensburg, PA 15601 
Phone: 724-832-8272 
Fax: 724-837-8278 

711 Bingham Street, Pittsburgh, PA 15203 
Phone: 412-995-5000 
Fax: 412-995-5001

Special features: calendar of fund-raising events; information about local community homes; community-based employment opportunities for individuals with retardation and other disabilities; early intervention programs; occupational, physical and speech/language therapy services.

Allegheny County Department of Human Services
One Smithfield Street, Pittsburgh, PA 15222
Phone: 412-350-5701 
Fax: 412-350-4004

Allegheny County Health Department
3333 Forbes Avenue, Pittsburgh, PA 15213 
Phone: 412-687-2243 
Fax: 412-578-8325

Allegheny County Intermediate Unit
1400 Penn Avenue, Suite 201, Pittsburgh, PA 15222-4332 

Information about schools, special and vocational education; also a calendar of meetings and access to eSchool News Online.

Association for Children and Adults with Learning Disabilities, Inc. – Allegheny Chapter (AC-ACLD) 
Girard Road, Pittsburgh, PA 15227 
Phone: 412-881-2253 
Fax: 412-881-2263 

The Children’s Home & Lemieux Family Center
Pediatric Specialty Hospital
Child’s Way Daycare for Medically Fragile children
5324 Penn Avenue
Pittsburgh, PA 15224
M- 412-441-4884

Pediatric Specialty Hospital care for medically complex patients. Hands on teaching for families, living accommodations, printed and video resources available through the READY. SET. HOME program. Child’s Way Daycare for Medically Fragile children open Monday through Friday, 6:30 a.m. to 6 p.m. for nursing, PT, OT, SPLT, and education. Specializing in care for children on ventilators, with tracheostomies, transplants, g-tubes, cerebral palsy, heart conditions, congenital anomalies, and other complex medical issues.

The Children’s Institute (formerly The Rehabilitation Institute) 
6301 Northumberland Street, Pittsburgh, PA 15217 
Phone: 412-420-2400 
Fax: 412-521-0570 

Special features: an up-to-date and relevant calendar of events plus a link to the ACCESS PENNSYLVANIA database.

Community Care Connections, Inc.
114 Skyline Drive, Butler, PA  16001
Phone: 724-283-3198

Community Care Connections, Inc. is a human services agency that provides services to individuals with any mentally and/or physically handicapping conditions.

Easter Seal Society of Western PA School Program
632 Fort Duquesne Blvd., Pittsburgh, PA 15222 
Phone: 412-281-7244 
Fax: 412-281-9333

eKidzCare is a pediatric focused home health agency providing health care options 24 hours a day seven days a week to children with medically complex health care needs. eKidzCare provides a full spectrum of home health services including extended hour shift care, skilled nursing visits, well baby visits, injection and diabetic teachings, and assistance at school as well as on school field trips. Some medically complex children they commonly care for are diagnosed with autism, seizure disorders, cerebral palsy, cancer, congenital anomalies, tracheostomy, and ventilator dependent children.

eKidzCare – Meadville, PA
16269 Conneaut Lake Rd., Suite 104, Meadville, PA 16335
Phone: 814-528-5498
Fax: 1-814-528-5574

eKidzCare – Sewickley, PA
1108 Ohio River Blvd., Ste.801, Sewickley, PA 15143
Phone: 412-324-1121
Fax: 1-877-585-7106

Leadership Education in Neurodevelopmental Disabilities and Related Disorders 
John G. Rangos Sr. Research Center
One Children's Hospital Drive, 4401 Penn Ave., Pittsburgh, PA 15224
Phone: 412-692-6300 
Fax: 412-692-8729 

Special features: Regional resources for individuals with disabilities by location (Eastern Ohio, Pennsylvania and West Virginia) and by diagnosis. Also, links of special interest and relevant general information for individuals with disabilities.

Parents Helping Parents with Intensive Care Newborns
300 Halket Street, Pittsburgh, PA 15213 
Phone: 412-641-NICU

Parent to Parent of Pennsylvania (Southwest PA Regional Office) 
316 Donohoe Road, Greensburg, PA  15601 
Toll free (in Pa. only): 1-888-727-2706 
Phone: 724-837-6530

Pennsylvania Department of Health - Southwest District Office
Division of Special Health Care Programs, 514 State Office Building
300 Liberty Avenue, Pittsburgh, PA 15222 
Phone: 412-880-0251 
Fax: 412-565-7582

Special Kids Network 
5320 N. Pioneer Rd., Gibsonia, PA 15044 
Toll free: 800-986-4550

Special Olympics Allegheny County
1100 Washington Ave., Room 213, Carnegie, PA 15106 
Phone: 412-279-5450

Spina Bifida Association of Greater Pittsburgh
UPMC Children's Hospital of Pittsburgh
One Children's Hospital Drive, 4401 Penn Ave., Pittsburgh, PA 15224

Spina Bifida Association of Western Pennsylvania 
134 Shenot Road, Building One, Wexford, PA 15090 
Phone: 800-243-5787 
Fax: 724-934-9610 

Features: up-to-date information about summer camp programs and weekend retreats.

United Cerebral Palsy of Pittsburgh 
4638 Centre Ave., Pittsburgh, PA 15213 
Phone: 412-683-7100 
Fax: 412-683-4160 

Special features: information about local residential support services, skill building classes, vocational training, the Elks Home Nurse Service, the Project Success community service program, the Partnership for Choice mentoring program.

UCP of Southern Alleghenies Region 
616 Somerset St., Johnstown, PA 15901 
Phone: 814-536-7708 
Fax: 814-536-8833 

UCP of Southwestern Pennsylvania 
655 Jefferson Ave., Washington, PA 15301 
Phone: 412-225-8145 
Fax: 412-225-4934 

United Way of Allegheny County
One Smithfield Street, PO Box 735, Pittsburgh, PA 15230
Phone: 412-261-6010 

University of Pittsburgh Center for Assistive Technology 
3010 Forbes Tower, 200 Lothrop Street, Pittsburgh, PA 15213 
Phone: 412-647-1210 
Fax: 412-647-1322

Watson Institute 
301 Camp Meeting Road, Sewickley, PA 15143 
Phone: 800-922-4226 

Special features: information about the institute’s services for children with autism, cerebral palsy, muscular dystrophy, spina bifida, neurological impairments, developmental delays, brain injuries and other impairments; video view of the facility; information about the CareBreak respite care program.

Online Support Programs

Children’s Disability List of Lists
A current, annotated list of mailing lists for families of children with disabilities and special needs; each list has been validated (by webmaster) for subscription information and family orientation.

Internet chat site created by and for people with physical disabilities; features chat room, message board, mailing list and more. Also offers links to a wide variety of other disability-related sites covering topics such as assistive technology, legal information, physical and learning disabilities, travel, publications, etc.

Healthlink USA
Links to web sites which primarily include personal stories, message boards and support for parents / families, with some information about treatment, statistics, and current research.

Mothers United for Moral Support (MUMS)
MUMS is a national Parent-to-Parent organization for parents or care providers of a child with any disability, disorder, chromosomal abnormality or health condition. The organization’s main purpose is to provide support to parents in the form of a networking system that matches them with other parents whose children have the same or similar condition. Through a database of over 16,000 families from 49 countries covering over 2800 disorders, even very rare syndromes or conditions can usually be matched.