Disease, Condition, and Syndrome Information

Cerebral Palsy Research Network — Wide range of links and information resources for individuals and families affected by cerebral palsy, or those interested in learning more about this condition. 

CHADD (Children and Adults with Attention-Deficit/Hyperactivity Disorder) — Features medical information, updates on current research, fact sheets, chat room and links to related sources. 

Children’s Craniofacial Association — Information and services for children with facial difference/disfigurement and their families. 

CP Parent — Well-organized, readable resource linking families to information about all aspects of cerebral palsy; includes a comprehensive FAQ, dictionary, links, and much more. Features overview of material presented in Cerebral Palsy: A Guide for Care by Miller, Bachrach, et al, published by Hopkins Press.

Hydrocephalus Association — Organization offers one-to-one telephone support plus a broad range of educational materials for families and individuals affected by hydrocephalus.

NORD Rare Disease Database: Klippel-Feil Syndrome — Information about this condition which involves congenital fusion of at least two of the seven vertebrae in the cervical-spine.

LD Online — Site is an interactive guide to learning disabilities and attention deficit disorders for parents, teachers and children. Features news, newsletter, “Kid Zone,” checklists, articles, discussion areas and more.

Learning Disabilities Association of America — Pittsburgh-based, nation's largest non-profit volunteer organization advocating for individuals with learning disabilities. Web site offers up-to-date calendar of events, links, news bulletin and fact sheets, plus a comprehensive array of books, videos and other resources for purchase.

National Center for Learning Disabilities — News, fact sheets, research reports, screening tools and other information about learning disabilities.

Spina Bifida Association of America — Families of children with spina bifida can find medical information, research and educational updates, plus access to local support groups.

United Ostomy Association, Inc. — Volunteer-based health organization providing education, information, support and advocacy for individuals (and their families) who have had or will have intestinal or urinary diversions. Links to suppliers, online magazine, support groups and more.

Urinary Incontinence in Children — Information about urinary incontinence in children from Johns Hopkins Medicine.