NDRD Patient Resources

Learn more with these resources and downloads. 

Lysosomal Storage Diseases

Hide and Seek Foundation for Lysosomal Disease Research
NORD, National Organization for Rare Disorders
Lysosomal Disease Network
ISMRD: The International * Advocate for Glycoprotein Storage Diseases
National Niemann-Pick Disease Foundation
Osteopetrosis

Mucopolysaccharidosis (MPS)

National MPS Society
MPS Australia
The Canadian Society of MPS and Related Diseases, Inc.
Irish Society for MPS Diseases

Hurler's-Scheie (MPS I)

MPS I

Hunter's (MPS II)

The Isaac Foundation: What is Hunter Syndrome

SanFilippo (MPS III)

Jonah's Just Begun — Foundation to Cure Sanfilippo

Leukodystrophies

United Leukodystrophy Foundation
The Myelin Project

ALD

The ALD Foundation
The Stop ALD Foundation

Krabbe

The Legacy of Angels Foundation
Krabbe's Kids
Judson's Legacy

MLD

The Evanosky Foundation
MLD Foundation

Other Links

NIH NINDS Disorders Index
DANA Foundation