Resources for Rheumatology Patients and Parents

American Academy of Pediatrics
The American Academy of Pediatrics is an organization of 60,000 pediatricians committed to the attainment of optimal physical, mental and social health and well-being for all infants, children, adolescents and young adults.

American College of Rheumatology
The American College of Rheumatology is an organization of and for physicians, health professionals and scientists that advances rheumatology through programs of education, research, advocacy and practice support that foster excellence in the care of people with arthritis and rheumatic and musculoskeletal diseases.

Arthritis Foundation
The Arthritis Foundation is the Champion of Yes. Leading the fight for the arthritis community, the Arthritis Foundation helps conquer everyday battles through life-changing information and resources, access to optimal care, advancements in science and community connections. Our goal is to chart a winning course, guiding families in developing personalized plans for living a full life - and making each day another stride towards a cure.

Childhood Arthritis & Rheumatology Research Alliance (CARRA)
The Childhood Arthritis & Rheumatology Research Alliance (CARRA) strives to prevent, treat and cure rheumatic diseases in children and adolescents through fostering, facilitating and conducting high quality research.

Stop Childhood Pain - The Childhood RND Educational Foundation
The Childhood RND Educational Foundation was formed to educate health professionals and families about the characteristics and treatment of reflex neurovascular dystrophy (RND) and other amplified musculoskeletal pain syndromes in children.

Cure Juvenile Myositis (JM) Foundation
The Cure JM Foundation serves patients and families battling juvenile dermatomyositis, polymyositis and amyopathic dermatomyositis.

Juvenile Scleroderma Network, Inc. (JSDN)
The Juvenile Scleroderma Network Inc. is a support network helping children and their families with juvenile scleroderma.

National Institute of Arthritis and Musculoskeletal and Skin Diseases
The National Institute of Arthritis and Musculoskeletal and Skin Diseases is to support research into the causes, treatment, and prevention of arthritis and musculoskeletal and skin diseases, the training of basic and clinical scientists to carry out this research, and the dissemination of information on research progress in these diseases.

JA Power Pack - Arthritis Foundation
The Arthritis Foundation understands and cares. As the Champion of Yes, they want to help you find your own personal victories. That's why they offer their JA Power Pack - a toolkit with useful information and tools to assist newly-diagnosed children and teens, as well as their parents. These resources were designed to give you and your family the power to make living with JA easier.

Reflex Sympathetic Dystrophy Syndrome Association (RSDSA)
The Reflex Sympathetic Dystrophy Syndrome Association (RSDSA) promotes public and professional awareness of Reflex Sympathetic Dystrophy Syndrome (RSD)/ Complex Regional Pain Syndrome (CRPS) and to educate those afflicted with the syndrome, their families, friends, insurance and healthcare providers on the disabling pain it causes.

Scleroderma Foundation, Western Pennsylvania Chapter
The Scleroderma Foundation supports patients and their families coping with scleroderma through mutual support programs, peer counseling, physician referrals and educational information; educates to promote public awareness and education through patient and health professional seminars, literature and publicity campaigns; and researches to stimulate and support research to improve treatment and ultimately find the cause of and cure for scleroderma and related diseases.

Spondylitis Association of America
The Spondylitis Association of America strives to be a leader in the quest to cure ankylosing spondylitis and related diseases, and to empower those affected to live life to the fullest.

The Children’s Institute
The Children’s Institute is dedicated to promoting the well-being of children, young people and their families and to providing services that meet their special needs.

The Lupus Foundation of America, Inc.
The Lupus Foundation of America (LFA) is the nation's leading non-profit voluntary health organization dedicated to finding the causes and cure for lupus. The foundation works to improve the diagnosis and treatment of lupus, support individuals and families affected by the disease, increase awareness of lupus among health professionals and the public and find the causes and cure.

The Lupus Foundation of Pennsylvania
The Lupus Foundation of Pennsylvania promotes awareness, education, service and research for those affected by lupus.

The Myositis Association
The Myositis Association is a 501(c)3 non-profit organization whose mission is to find a cure for inflammatory and other related myopathies, while serving those affected by these diseases. TMA's programs and services provide information, support, and advocacy for myositis patients. The Myositis Association's research program awards grants and fellowships to research the causes, treatments and eventually find a cure for all forms of myositis.

Vasculitis Foundation
The Vasculitis Foundation advocates for early diagnosis, leading edge treatment and ultimately a cure for all types of vasculitis.