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This interview was conducted with a 10-year-old boy who received a small bowel transplant after suffering from a spontaneous volvulus of the small bowel.
I didn't do any research, she did. [Points to mom]
Mom: I did a lot of research, mostly Internet searches. [I found that] MedScape was helpful. [Another good website] is Gifts from Heaven. They pass along information and support to families [of kids who need transplants].
Dad: She's a nurse, and she asked her supervisor at work for more information.
Mom: We also bought some books, and got some from the library. But those books dealt mostly with transplants in general; we found the Internet was more helpful for getting specific information about intestinal transplantation.
I first came in 2001. I had lots of tests, so it wasn't too good of an experience. Blood tests, liver biopsy, lower and upper GIs . . .
I was expecting lots of pills. I was afraid of rejection, and lots of pain.
I was on the waiting list for one and a half years.
Mom: I was at work, and [my husband] called to tell me. I said, "No way." In all that time, we'd gotten used to calls. One time, we actually got on a plane [to come to the hospital and receive the transplant], but the donor family backed out. There are false alarms, so we learned not to get our hopes up.
July 9th, 2002.
I have a little more energy, but it's only been a month. I'm getting there. I'd say actually getting the transplant, and realizing that I got it.
Be brave; you'll get through it. And beware of the multi-vitamin; it tastes nasty!
Children's Hospital's main campus is located in the Lawrenceville neighborhood. Our main hospital address is:
UPMC Children’s Hospital of Pittsburgh
One Children’s Hospital Way
4401 Penn Ave.
Pittsburgh, PA 15224
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