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Cardiothoracic Surgery Patient Stories

Meet our patients and read their remarkable stories of hope and inspiration from the Division of Pediatric Cardiothoracic Surgery at UPMC Children's Hospital of Pittsburgh.

Hypoplastic Left Heart Syndrome – Lorenzo’s Story

Lorenzo smiling and holding his stuffed animal sheep.

Megan knew early in her pregnancy that her son, Lorenzo, had hypoplastic left heart syndrome — a rare congenital heart defect where the left side of the heart is underdeveloped.

Read Lorenzo's story

Atrial Septal Defect – Jax's Story

Jax playing with a toy

Early in 2025 Lena did a genetic test for her 7-year-old son, Jax. The results revealed 13q deletion syndrome.

Read Jax's story

Atrioventricular Septal Defect – Jaylin's Story

Jaylin with her stuffed animal fox

Routine prenatal testing showed that Jaylin had Down syndrome. When she was born in September 2024, doctors also found she had an atrioventricular septal defect.

Read Jaylin's story

Double Outlet Right Ventricle – Miles’ Story

Miles smiling and posing with his stuffed dog Silvie on his head

Before Miles was born, his parents knew he had a rare congenital heart defect — double outlet right ventricle. Read about the success of his procedure and experience at UPMC Children's Hospital Pittsburgh.

Read Miles's story

Double Aortic Arch – Teagan's Story

Teagan smiling with her stuffed animal platypus

Teagan spent the first year of her life at UPMC Children’s Hospital of Pittsburgh due to multiple complex heart issues. Read about the success of her procedure and experience at UPMC Children's Hospital Pittsburgh.

Read Teagan's story

Pulmonary atresia with Intact Ventricular Septum and Hypoplastic Right Ventricle – Will's Story

Baby Will sitting and smiling with all of his moose books, signs, and stuffed animals

During Will's 20-week ultrasound, Will was diagnosed with pulmonary atresia with intact ventricular septum and hypoplastic right ventricle. Read about the success of his procedure and experience at UPMC Children's Hospital Pittsburgh.

Read Will's story

Tetralogy of Fallot – Emalee's Story

Emalee smiling and holding her stuffed animal red panda

As a newborn, Emalee was diagnosed with an extreme form of tetralogy of Fallot — a congenital disorder with a combination of four heart defects that changes the way blood flows.

Read Emalee's story

Hypoplastic Right Heart Syndrome with Pulmonary Atresia – Liam's Story

Liam smiling

Before birth, a scan showed Liam had hypoplastic right heart syndrome with pulmonary atresia, a rare and complex congenital heart condition.

Read Liam's story

Double Aortic Arch - Callie’s Story

A baby named Callie holding a stuffed giraffe

When Senna was 20 weeks pregnant with her daughter, Callie, a scan revealed the baby was likely to be born with a double aortic arch.

Read Callie's story

Transposition of the Great Arteries - Charlie’s Story

A young boy named Charlie

During his 20-week ultrasound, Charlie was diagnosed with transposition of the great arteries (TGA).

Read Charlie's story

Double Inlet Left Ventricle - Asher’s Story

A young boy named Asher holding a stuffed animal

Asher was born in October 2021 and spent the first five months of his life in UPMC Children’s Hospital of Pittsburgh.

Read Asher's story

Partial Anomalous Pulmonary Venous Return with Atrial Septal Defect - Luella’s Story

A young girl named Luella sitting in front of her collection of Red Panda stuffed animals

When Luella was eight years old, she got a trampoline. This was an exciting new addition to the backyard, but after a day of jumping, she developed chest pain.

Read Luella's story

Hypoplastic Left Heart Syndrome - Miller’s Story

A young boy named Miller smiling and holding a stuffed Teenage Mutant Ninja Turtle

During a 20-week prenatal ultrasound, Miller was diagnosed with hypoplastic left heart syndrome (HLHS), a congenital heart defect where the left side of the heart doesn’t develop correctly.

Read Miller's story

Double Outlet Right Ventricle - Ajax’s Story

A young boy named Ajax, smiling and holding a brown dog stuffed animal

Ajax was diagnosed with double outlet right ventricle, a congenital heart defect that affects the body’s blood flow and oxygen levels.

Read Ajax's story

Tetralogy of Fallot - Emmett’s Story

A young boy named Emmett sleeping

Emmett spent the first two weeks of his life in the cardiac intensive care unit at UPMC Children’s Hospital of Pittsburgh. He had been diagnosed with tetralogy of Fallot – a combination of four heart defects.

Read Emmett's story

Total Anomalous Pulmonary Venous Return - Otto’s Story

A young baby named Otto laying with a Winnie the Pooh stuffed animal

During the routine car seat tolerance screen two days after he was born, the team at UPMC Magee-Womens Hospital noticed irregularities in Otto’s breathing and heart function.

Read Otto's story

Absence of the Right Pulmonary Artery - Yahya’s Story

A young boy named Yahya wearing a black winter coat and holding a white bear stuffed animal

At the age of 4, Yahya became sick with a bad cold. As his coughing and shortness of breath worsened, his parents decided to take him to the emergency room at UPMC Children’s.

Read Yahya's story

Ebstein’s Anomaly – Cardiothoracic Surgery

Amanda and Katharine Babst | UPMC Children's Hospital of Pittsburgh

Katharine was born with Ebstein’s anomaly. After her family moved to Pittsburgh, the first phone call her mother, Amanda, made was to the Heart Institute at UPMC Children’s.

Read Katharine's story

Hypoplastic Left Heart Syndrome (HLHS) - Lorenzo's Story

Lorenzo Gallagher

At a 20-week ultrasound appointment in their hometown of Harrisburg, Megan and Philip’s son, Lorenzo, was diagnosed with hypoplastic left heart syndrome (HLHS). Megan and Philip were determined to give their son the best chance at life and turned to the experts at UPMC for their son's comprehensive care.

Read Lorenzo's story