For Families and Caregivers

Currently, guidelines for treating children are often based on data from adult studies. To improve clinical care of children, more studies are needed focusing on children's health with the goal to better diagnose, treat, and prevent the diseases that are specific to children.


To fill an important gap in information and education for families and caregivers, the following are resources that provide information on the importance of trials, the potential benefit from participation, and things to consider before, during, and after joining a study.