For Patients and Families of the Adult Congenital Heart Disease Center

The Adult Congenital Heart Disease Center at UPMC Children's Hospital of Pittsburgh supports both our patients and their loved ones.

Many people find these resources can help answer questions or ease any concerns about congenital heart disease. Of course, you can always contact the ACHD Center with questions.

Congenital Heart Disease Resources for Patients and Families

• Live Healthy With CHD: Adult Congenital Heart Association (ACHA)
  The ACHA offers a wide range of programs and resources to help improve the lives of people born with heart defects. You'll find fact sheets on adult congenital heart disease, tips for healthy living, and more.
• Congenital Heart Disease: Cove Point Foundation at Children's Hospital
  This portal has a wealth of educational info on childhood and adult CHD. The website is in both English and Spanish.
• Patient CHD: International Society for Adult Congenital Heart Disease
  This site defines common terms your doctor might use to describe your heart disease and health. You'll also find links to support groups in the U.S. and abroad.
• Pediatric and Congenital Heart Surgery Report (PDF)
  Compare results among UPMC Children's and four other hospitals that perform heart surgery in children. The 2017 (most recent) report includes data for various heart procedures between 2012 and 2015.

Pregnancy and family planning

• Heart Disease and Pregnancy: Resources for Patients and Doctors
  This site has educational materials on common heart conditions seen in young women of childbearing age. It offers info about the risks and management strategies for women with heart disease trying to have a baby.

Resources for Doctors and Health Care Staff

• For Health Care Professionals: The Heart Institute at UPMC Children’s Hospital of Pittsburgh
  The Heart Institute offers HCPs the latest news, screening tips, and referral information.
• American College of Cardiology: Adult Congenital Heart Disease and Pediatric Cardiology
  Find the latest news and guidelines on adult and pediatric congenital heart disease.