Ebstein’s Anomaly Patient Stories

Meet our Ebstein's anomaly patients and their families and hear their inspiring stories with the Da Silva Center for Ebstein’s Anomaly at UPMC Children's Hospital of Pittsburgh.

Tiago was diagnosed with Ebstein’s anomaly before birth. Read about his journey from Slovakia to UPMC Children’s Hospital of Pittsburgh.
Read Tiago's Story >>
When Filip was 10 months old, he and his parents traveled from Krakow to Pittsburgh to have the Da Silva Center perform his cone procedure.
Read Filip's Story >>
In 1993, Jose Pedro da Silva created the Cone technique to repair Ebstein's anomaly, a rare congenital heart defect. Thais Diniz Alves was the first patient to receive this innovative surgical technique from Dr. da Silva. Watch her story here.
Read Thais's Story >>
After attending an ultrasound appointment for their new baby, Tressa and Chase received news that their son, Matthias, had Ebstein's anomaly. The parents-to-be travelled to Pittsburgh to be with the Da Silva Center team for his birth.
Read Matthias's Story >>
Steph and Mondo's son, Aries, was diagnosed with Ebstein's anomaly before birth. The family travelled to Pittsburgh for care from the experts at the Da Silva Center.
Read Aries's Story >>
Katharine was born with Ebstein’s anomaly. After her family moved to Pittsburgh, the first phone call her mother, Amanda, made was to the Heart Institute at UPMC Children’s.
Read Katharine's Story >>
Edward, 53, was born with Ebstein’s anomaly, a congenital heart malformation that involves the tricuspid valve and the right ventricle. He went to the Da Silva Center team for help.
Read Edward's Story >>
David was diagnosed with Ebstein’s anomaly before he was born. His family left Puerto Rico for the first time to bring him to the Da Silva Center for the cone procedure.
Read David's Story >>
Dr. Da Silva performed Avery’s cone procedure when she was 4 years old. Just 10 days after the procedure, Avery got to go home.
Read Avery's Story >>
Two weeks before she was born, Casyn’s family moved across the country to Pittsburgh to be with the Da Silva Center team for her birth.
Read Casyn's Story >>
Jocelyn and her mom were both born with Ebstein’s anomaly. Jocelyn’s cone procedure was done at the Da Silva Center. Three months later, her mom followed in her footsteps.
Read Jocelyn's Story >>