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For more information about research, please call our main office at 412-692-6438.
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For further information and resources regarding Fragile X Syndrome, call, write, or visit the following organizations and request a copy of their newsletter or other publications.
Take part in The National Fragile X Survey The National Fragile X Survey will look at how fragile X affects families. The survey will be the first to gather national data from families that can be used to inform policy and improve practice.
The National Fragile X Foundation (NFXF) 1861 International Drive, Suite 200 McLean, VA 22102 800-688-8765 E-mail: contact@fragilex.org
The NFXF has been serving the Fragile X community since 1984. Its Mission is to serve the entire Fragile X community to live their best lives by providing the knowledge, resources, and tools until, and even after, more effective treatments and a cure are achieved. Its areas are: Advocacy, Education, Research, and Treatment. Learn more about The National Fragile X Foundation.
FRAXA Research Foundation 45 Pleasant Street Newburyport, MA 01950 978-462-1866 978-463-9985 (fax) E-mail: kclapp@fraxa.org Web: http://www.fraxa.org/
A national nonprofit organization that funds research aimed at finding a treatment or cure for Fragile X Syndrome. Publishes a quarterly newsletter, FRAXA Update, as well as other materials. Maintains a Web site and lists about Fragile X; and organizes advocacy and fundraising events around the country.
The National Institute of Child Health and Human Development (NICHD) P.O. Box 3006 Rockville, MD 20847 1-800-370-2943 301-984-1473 (fax) E-mail: NICHDInformationResourceCenter@mai.nih.gov Web: http://www.nichd.nih.gov
The NICHD Information Resource Center is a source for NIHD brochures, booklets, and other materials related to the health of children adults, families, and populations.
Dolan Learning Center - Your Genes Your Health
This site is a multi-media guide to genetic disorders.
Check out information about general education resources, IEP websites, and IEP books/DVDs. Go to The National Fragile X Foundation website.
Children's Hospital's main campus is located in the Lawrenceville neighborhood. Our main hospital address is:
UPMC Children’s Hospital of Pittsburgh One Children’s Hospital Way 4401 Penn Ave. Pittsburgh, PA 15224
In addition to the main hospital, Children's has many convenient locations in other neighborhoods throughout the greater Pittsburgh region.
With myCHP, you can request appointments, review test results, and more.
For questions about a hospital bill call:
To pay your bill online, please visit UPMC's online bill payment system.
Interested in giving to Children's Hospital? Support the hospital by making a donation online, joining our Heroes in Healing monthly donor program, or visiting our site to learn about the other ways you can give back.