Read the Latest
Children's Hospital is part of the UPMC family.
Be safe anytime, anywhere.
To find a pediatrician or pediatric specialist, please call 412-692-7337 or search our directory.
A resource for our network of referring physicians.
For more information about research, please call our main office at 412-692-6438.
Ranked #6 Nationally by U.S. News & World Report.
Welcome to the Fragile X Parents Handbook from UPMC Children’s Hospital of Pittsburgh. The information and resources here will help you manage the care and enhance the development of a child in your life who has Fragile X.
In order to better serve the needs of patients with a diagnosis of Fragile X and their families, the Fragile X Center at Children’s Hospital continues to develop partnerships with specialty services within the hospital. Our aim is to provide specific consultation services, recommendations and treatment as appropriate. Most recently, the Division of Pediatric Ophthalmology at Children’s Hospital and The Children’s Eye Center agreed to join in our efforts to better address the needs of patients with Fragile X and their families.
The American Academy of Pediatrics recommends that an eye evaluation be performed early in a child’s life to check for visual problems commonly seen in patients with Fragile X. Children should be checked for strabismus (lazy eye or crossed eye) at six to 12 months.
The Children’s Eye Center will provide a half-day session monthly to schedule Fragile X patients for an outpatient evaluation at the center. An eye/vision report will be shared with you, your PCP and the Fragile X Center after your first visit.
If your child is 6 to 12 months, schedule an evaluation.
If your child is 2 years or older, he/she should have an annual eye evaluation.
Call the Division of Pediatric Ophthalmology at UPMC Children’s Hospital of Pittsburgh at 412-692-8940.
We are proud to share with you news of this partnership with the Division of Pediatric Ophthalmology. We look forward to our continued relationship with you, the Division of Pediatric Ophthalmology and other specialties within the hospital as we strive to serve children with Fragile X and their families.
If you have any questions for the Fragile X Center, please call 412-692-5561. Thank you for helping us to better serve you and your child.
Project Director/Medical Director
Robyn Filipink, MD
Clinician and Principal Research Investigator
Rebecca Kronk, CRNP, PhD
Clinic Coordinator and Data Manager
Paula Ciliberti, MA
Children's Hospital's main campus is located in the Lawrenceville neighborhood. Our main hospital address is:
UPMC Children’s Hospital of Pittsburgh
One Children’s Hospital Way
4401 Penn Ave.
Pittsburgh, PA 15224
In addition to the main hospital, Children's has many convenient locations in other neighborhoods throughout the greater Pittsburgh region.
With myCHP, you can request appointments, review test results, and more.
For questions about a hospital bill call:
To pay your bill online, please visit UPMC's online bill payment system.
Interested in giving to Children's Hospital? Support the hospital by making a donation online, joining our Heroes in Healing monthly donor program, or visiting our site to learn about the other ways you can give back.