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For more information about research, please call our main office at 412-692-6438.
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A specific treatment plan for TSC will be determined by your child's physician based on:
Because TSC is a lifelong condition that is not curable, the focus is on medically managing the symptoms and providing ongoing surveillance monitoring for involvement of the many organ systems affected by this disease.
Each child is treated by a multidisciplinary team that may include professionals from a variety of support services, including:
Managing the symptoms of TSC includes focusing on preventing or minimizing disabilities and maximizing your child's capabilities at home and in the community. The support of our neurosurgeons may be needed to remove epileptic tubers in the brain if they cause seizures, or on rare occasions to remove tumors called SEGAs (subependymal giant cell astrocytomas) if they are enlarging and not responding to medical treatment.
The full extent of the disease may be revealed as your child grows and develops. Genetic counseling may be recommended by the physician to provide information about the risk of recurrence of these disorders and any available testing.
Children's Hospital's main campus is located in the Lawrenceville neighborhood. Our main hospital address is:
UPMC Children’s Hospital of Pittsburgh
One Children’s Hospital Way
4401 Penn Ave.
Pittsburgh, PA 15224
In addition to the main hospital, Children's has many convenient locations in other neighborhoods throughout the greater Pittsburgh region.
With myCHP, you can request appointments, review test results, and more.
For questions about a hospital bill call:
To pay your bill online, please visit UPMC's online bill payment system.
Interested in giving to Children's Hospital? Support the hospital by making a donation online, joining our Heroes in Healing monthly donor program, or visiting our site to learn about the other ways you can give back.