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Through this program, researchers will use input from people with craniofacial conditions to develop a patient-reported outcome tool – a questionnaire that will help clinicians measure and understand what young patients with facial differences think and feel about their appearance.
Children and young adults of both genders, ages 7 to 25 years, who have been diagnosed with craniofacial conditions – anomalies both congenital and acquired (trauma, burns) – are eligible to participate.
Males and Females: Ages 7 to 25
Participants will be asked to complete a short questionnaire that asks how they feel about certain facial features and how they feel about themselves. Additionally, researchers will collect medical history information about participants.
Visits: Survey will be given during a normal clinic visit
Duration: Not applicable
Canadian Institutes of Health Research
Plastic Surgery Research
Jesse Goldstein, MD
For more information about the study or enrollment, please contact:
Research Specialist Jennifer Fantuzzo, BS
Children's Hospital's main campus is located in the Lawrenceville neighborhood. Our main hospital address is:
UPMC Children’s Hospital of Pittsburgh
One Children’s Hospital Way
4401 Penn Ave.
Pittsburgh, PA 15224
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