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Through this program, researchers will use input from people with craniofacial conditions to develop a patient-reported outcome tool – a questionnaire that will help clinicians measure and understand what young patients with facial differences think and feel about their appearance.
Children and young adults of both genders, ages 7 to 25 years, who have been diagnosed with craniofacial conditions – anomalies both congenital and acquired (trauma, burns) – are eligible to participate.
Males and Females: Ages 7 to 25
Participants will be asked to complete a short questionnaire that asks how they feel about certain facial features and how they feel about themselves. Additionally, researchers will collect medical history information about participants.
Visits: Survey will be given during a normal clinic visit
Duration: Not applicable
Canadian Institutes of Health Research
Plastic Surgery Research
Jesse Goldstein, MD
For more information about the study or enrollment, please contact:
Research Specialist Jennifer Fantuzzo, BS
Children's Hospital's main campus is located in the Lawrenceville neighborhood. Our main hospital address is:
UPMC Children’s Hospital of Pittsburgh
One Children’s Hospital Way
4401 Penn Ave.
Pittsburgh, PA 15224
In addition to the main hospital, Children's has many convenient locations in other neighborhoods throughout the greater Pittsburgh region.
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