Craniofacial Disorder Quality of Life: The FACE-Q Kids Study

An International Study to Develop a Patient-Reported Outcome Instrument for Conditions Associated With a Facial Difference: FACE-Q Kids

Protocol Description

Through this program, researchers will use input from people with craniofacial conditions to develop a patient-reported outcome tool – a questionnaire that will help clinicians measure and understand what young patients with facial differences think and feel about their appearance.

Eligibility Criteria

Children and young adults of both genders, ages 7 to 25 years, who have been diagnosed with craniofacial conditions – anomalies both congenital and acquired (trauma, burns) – are eligible to participate.
Males and Females: Ages 7 to 25


Participants will be asked to complete a short questionnaire that asks how they feel about certain facial features and how they feel about themselves. Additionally, researchers will collect medical history information about participants.
Visits: Survey will be given during a normal clinic visit
Duration: Not applicable

Status: Open to Enrollment

Source(s) of Support

Canadian Institutes of Health Research

Additional Information

Plastic Surgery Research

Primary Investigator

Jesse Goldstein, MD

Contact Information

For more information about the study or enrollment, please contact:
Research Specialist Jennifer Fantuzzo, BS