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Children's Hospital of Pittsburgh
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Children's Hospital of Pittsburgh

Education Planning for Fragile X Syndrome Patients

Educational Issues

Fragile X educationAfter accepting the Fragile X diagnosis, parents move on to face their next challenge — determining how to enhance their child’s functioning. The mission becomes one of deciding how they can best facilitate successful intervention, and in doing so, extend their child’s best possible opportunity to learn.

This article includes information on:

  • Special education
  • Placement and supplemental services
  • Learning styles of children with Fragile X
  • Strategies for teaching

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Educating School Personnel and Other Parents About Fragile X Syndrome

When meeting with school personnel, parents should present the information they feel is most important for the staff to know about their child. Bring the child or pictures of him or her to the meeting. Let the staff see that Fragile X Syndrome is more than a list of characteristics, some of which are not seen very positively.

This article provides an outline that parents can follow when meeting with their child’s school faculty.

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Establishing a School Program for a Child with Fragile X Syndrome

This article outlines tips parents can use to ensure their children’s school program is appropriate for their needs.

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Potential Needs of School-Aged Children with Fragile X Syndrome

The needs of school-aged children with Fragile X Syndrome include academic, behavioral, social/adaptive, pre-vocational/vocational and physical.

This article discusses ways parents can help children with Fragile X adapt, learn and develop in all areas of their life.

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Developing an IEP for Individuals with Fragile X Syndrome

The passage of the Education for All Handicapped Children Act of 1975 was the most significant legislation enacted to meet the needs of special needs children. In 1986, it was expanded to include requirements to children ages 3 to 5 years. In 1990, the act was changed to the Education of Individuals with Disabilities Act (IDEA), which included several changes related to inclusion, placing more emphasis on including the person with a disability in mainstream society, including preschool, public school evaluations and community placements.

This article includes:

  • A parent’s first-hand account of developing an individualized education program (IEP) for her child
  • Important points to consider when developing an IEP

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