Adults with Congenital Heart Disease Awaiting Cardiac Transplantation

Late Outcomes and Survival in Adults with Congenital Heart Disease Awaiting Cardiac Transplantation II

Protocol Description

The purpose of this research study is to track the progress of patients with adult congenital heart disease (ACHD) who have been referred to the Heart Transplant Program at UPMC. Medical diagnosis and treatment of congenital heart disease has led to a growing population of adults with unique needs in terms of cardiac care. By focusing on an ACHD subset with heart failure who may be candidates for heart transplant, this research will help clinicians to better understand how transplant eligibility and outcomes for this group of patients differs from other candidates for heart transplant.

Eligibility Criteria

The study population comprises patients with congenital heart disease, who were 18 years of age when put on a transplant list, and who were put on a transplant list on or after Jan. 1, 2000.
Males and Females: Ages 18 and older


There are no requirements for participants. Clinical data is taken from the medical record for review and analysis.
Visits: None required
Duration: Not applicable

Status: Enrolls from Current Patient Cases

Primary Investigator

Arvind Hoskoppal, MD

Contact Information

For more information about the study, please contact:
Morgan Hindes, Research Coordinator