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The purpose of this research study is to track the progress of patients with adult congenital heart disease (ACHD) who have been referred to the Heart Transplant Program at UPMC. Medical diagnosis and treatment of congenital heart disease has led to a growing population of adults with unique needs in terms of cardiac care. By focusing on an ACHD subset with heart failure who may be candidates for heart transplant, this research will help clinicians to better understand how transplant eligibility and outcomes for this group of patients differs from other candidates for heart transplant.
The study population comprises patients with congenital heart disease, who were 18 years of age when put on a transplant list, and who were put on a transplant list on or after Jan. 1, 2000.
Males and Females: Ages 18 and older
There are no requirements for participants. Clinical data is taken from the medical record for review and analysis.
Visits: None required
Duration: Not applicable
Adult Congenital Heart Disease Center
Congenital Heart Defect Types
Arvind Hoskoppal, MD
For more information about the study, please contact:
Morgan Hindes, Research Coordinator
Children's Hospital's main campus is located in the Lawrenceville neighborhood. Our main hospital address is:
UPMC Children’s Hospital of Pittsburgh
One Children’s Hospital Way
4401 Penn Ave.
Pittsburgh, PA 15224
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