Pediatric and Congenital Heart Disease with Heart Failure – Treatment with Advanced Cardiac Therapies: The ACTION Project

Advanced Cardiac Therapies Improving Outcomes Network (ACTION) to Improve the Health of Pediatric and Congenital Heart Disease Patients with Heart Failure

Protocol Description

The ACTION Learning Network consists of clinicians, researchers, parents, and patients from across a wide variety of medical institutions. The goal is to improve critical outcomes for children with heart failure by uniting providers and families, sharing data and outcomes transparently, improving education and standardizing best practices. The current focus is on improving outcomes for pediatric ventricular assist device (VAD) patients. The goal of this network learning approach is to expedite improvements across the collaborative system. Other heart failure initiatives will follow.

Eligibility Criteria

Subject to certain exclusion criteria, this study is enrolling patients implanted with either a durable or temporary ventricular assist device (VAD) or a total artificial heart, and patients admitted to the hospital with heart failure or being followed on an outpatient basis with heart failure, regardless of cause.
Males and Females: All Ages


There are no requirements for participants at this time. Clinical data is extracted from the medical record for review and analysis.
Visits: Not applicable
Duration: Not applicable

Status: Enrolls from Current Patient Cases

Source(s) of Support

ACTION Learning Network

Primary Investigator

Matthew Zinn, DO

Contact Information

For more information about the study or enrollment, please contact:
Maggie Abraham, CCRC