IBD ImproveCareNow Registry

Using Patient Data to Transform Care and Improve Outcomes for Children, Adolescents and Young Adults with Inflammatory Bowel Disease

Protocol Description

ImproveCareNowA research component of the ImproveCareNow (ICN) collaborative network, the ICN research registry is a secure database of information about children, adolescents, and young adults with Crohn’s disease and ulcerative colitis, also called inflammatory bowel disease (IBD). ICN is a community of providers, patients, and parents working together to find new and better ways to treat and deal with Crohn’s disease and ulcerative colitis. The registry enables researchers to utilize de-identified data to better compare outcomes for provider institutions and to accelerate leading-edge research about these conditions.

Eligibility Criteria

This study is accepting patients of both genders and all ages who have Crohn’s disease or ulcerative colitis.
Males and Females: All ages


Research participants will allow their healthcare providers to submit information about their health and medical status, tests, treatments, and treatment response, as well as information about daily experience with IBD and overall well being. Beyond gender, age and zip code, the patient information will be non-identifiable.
Visits: None beyond normal clinical care visits
Duration: Not applicable

Status: Open to Enrollment

Primary Investigator

Leah Siebold, MD

Contact Information

For more information about the study or enrollment, please contact:
Roger Odom, MSIT, MBA