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The purpose of this research registry is to collect information about patients with sickle cell disease and their treatments. The registry will allow researchers to review and study medical information about many individuals with sickle cell disease, which may help them to answer questions about the disease, its treatment, and best ways to optimize the delivery of care. It will also help researchers identify and recruit patients who are eligible for participation in future studies directed at evaluating the safety and effectiveness of drugs, devices, or procedures.
This study is enrolling participants of both genders, who are older than a month of age and who are being treated in the Sickle Cell Program of Children’s Hospital of Pittsburgh of UPMC.
Males and Females: Ages 1 month and older
With permission, participants’ past, current, and future medical record information will be placed into the research registry. Participants who opt to join the Children’s Sickle Cell Foundation may also be asked to complete surveys in the future related to sickle cell disease.
Visits: Not applicable
Duration: Participants may be enrolled for life
Cancer and Blood Disorder Research
Cheryl A. Hillery, MD
For more information about the study or enrollment, please contact:
Angela Martino, BSN, RN
Children's Hospital's main campus is located in the Lawrenceville neighborhood. Our main hospital address is:
UPMC Children’s Hospital of Pittsburgh
One Children’s Hospital Way
4401 Penn Ave.
Pittsburgh, PA 15224
In addition to the main hospital, Children's has many convenient locations in other neighborhoods throughout the greater Pittsburgh region.
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